Children and Youth with Special Health Care Needs

How States Use Medicaid Managed Care to Deliver Long-Term Services and Supports to Children with Special Health Care Needs

An increasing number of state Medicaid agencies are using managed care to provide long-term services and supports to children and youth with special health care needs (CYSHCN). This new NASHP issue brief explores the strategies and critical contract language and policies that states are using to implement these Medicaid managed care programs to provide long-term […]

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  • Publications
    State Strategies for Shared Plans of Care to Improve Care Coordination for Children and Youth with Special Health Care Needs

    State Strategies for Shared Plans of Care to Improve Care Coordination for Children and Youth with Special Health Care Needs

    Care coordination is an essential component of care for children and youth with special health care needs (CYSHCN). When successfully implemented, it can improve care, reduce costs, avoid fragmented and duplicative care, and improve family functioning and satisfaction. As states work to provide quality care coordination, many are adopting shared plans of care (SPoC) to […]

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  • State Health Policy Blog
    Why Shared Plans of Care Are Critical to Coordinated Care and How States Are Implementing Them

    Why Shared Plans of Care Are Critical to Coordinated Care and How States Are Implementing Them

    Children and youth with special health care needs (CYSHCN) can require significant care coordination across a continuum of health and social services. Improved care coordination for CYSHCN can lead to better outcomes for CYSHCN, as well as cost savings for states. To achieve those goals, state Medicaid agencies and Title V CYSHCN programs are increasingly […]

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  • Toolkits
    Toolkit: National Standards for Children and Youth with Special Health Care Needs

    Toolkit: National Standards for Children and Youth with Special Health Care Needs

    The National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) define the core components of a comprehensive, coordinated, and family-centered system of care for CYSHCN. Nearly 20 percent of US children under age 18 have special health care needs. This toolkit provides a portal to critical tools, fact sheets, and other resources that states can […]

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  • How State Medicaid and Title V Partnerships Improve Care for Children with Special Health Care Needs in Medicaid Managed Care

    How State Medicaid and Title V Partnerships Improve Care for Children with Special Health Care Needs in Medicaid Managed Care

    States are increasingly utilizing Medicaid managed care (MMC) to serve children and youth with special health care needs (CYSHCN), who often require a complex array of services. Many states are finding that forging partnerships between their MMC systems and Title V CYSHCN programs improves care coordination, transitions from pediatric to adult care systems, quality of […]

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  • State Strategies to Advance Medical Homes for Children and Youth with Special Health Care Needs

    State Strategies to Advance Medical Homes for Children and Youth with Special Health Care Needs

    Medical homes are critical components of comprehensive care systems for children and youth with special health needs (CYSHCN). They can reduce costs and improve outcomes and care experiences for CYSHCN and their families. This new report, State Strategies to Advance Medical Homes for Children and Youth with Special Health Care Needs, examines effective strategies used […]

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  • State Health Policy Blog
    How States Can Improve Access to Care for Children Under the Medicaid Managed Care Rule

    How States Can Improve Access to Care for Children Under the Medicaid Managed Care Rule

    Next month, states face new federal requirements for establishing and maintaining Medicaid managed care provider networks. As they work to comply with these new rules, states have an opportunity to strengthen access to care for children and youth with special health care needs (CYSHCN). Medicaid and requirements, which address how enrollees access care and the […]

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  • Webinars

    Webinar: Meaningful Family Engagement, from Clinical Care to Health Policy

    1 p.m. (EST) Wednesday, June 6 Join the Lucile Packard Foundation for Children’s Health for a lively discussion about the article, Families of Children With Medical Complexity: A View From the Front Lines. The lead author and experts in the field will review the article’s key content and share ways to strengthen family engagement. It […]

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  • Publications
    How Six States Use Medicaid Managed Care to Serve Children with Special Health Care Needs

    How Six States Use Medicaid Managed Care to Serve Children with Special Health Care Needs

    Medicaid managed care provides a unique opportunity for states to strengthen the structure and delivery of care for children and youth with special health care needs (CYSHCN). The National Academy for State Health Policy (NASHP), studied how six states (Arizona, Colorado, Minnesota, Ohio, Texas, and Virginia) designed their managed care systems to serve CYSHCN and […]

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  • State Health Policy Blog
    States Drive Innovations in Quality Measurement and Improvement for Children with Special Health Care Needs

    States Drive Innovations in Quality Measurement and Improvement for Children with Special Health Care Needs

    Children and youth with special health care needs (CYSHCN) are a diverse population whose health care needs and costs often exceed those of most children. Improving care for this population is critical, yet challenging, due to the complexity of conditions of some children, and the multitude of systems (e.g., health, education, social services) and supports […]

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