Engaging Leaders: Establishing and Effectively Using a Stakeholder Committee

Broad stakeholder participation helps improve the design of project models, encourages stakeholders to add resources to the projects, and builds support for program expansion, policy improvement, and practice change. Partnerships with providers and provider associations are crucial to obtaining provider acceptance and support. The creation of a state public/private partnership that explicitly includes pediatric provider leadership and families will improve the quality of care delivered in primary care settings.  Additionally, active partnerships with providers and provider associations are crucial to obtaining provider acceptance and support for change. Active participation of state agencies, including Maternal and Child Health bureaus, children’s mental health departments and lead agencies for Early Intervention/Part C, can support the spread of structured screening and improve linkages between primary health care providers and other child and family service providers and community resources, assuring young children and their families receive needed services.

This section includes tools created to help identify and engage a wide range of stakeholders in state efforts to improve the healthy development of young children.

 

Title Description Date Published Resource State
AR Links Community Cafés and Protocol (AR LINKS: 2012) This is a protocol designed by the Arkansas ABCD III team to be used at Community Cafés designed to raise awareness about the project and the state’s ABCD III work. The protocol is designed to ask participants information about child health and development services, and where they receive their information. The protocol also requests information regarding ways participants believe the delivery systems providing services can be improved. August 2012 State-specific Arkansas
Early Intervention/Early Childhood Special Education Central Directory (Oregon Department of Education: 2012) This website provides links to early childhood state and national resources for parents, providers and the general public. These resources include tools for developmental screening, contact information for parents with concerns about a child’s development, links to organizations that can assist parents of children with disabilities, and more. June 2012 State-specific Oregon
Early Intervention Strategic Interview Template (Oregon ABCD III Project: 2012) This is an interview template developed by the Oregon Pediatric Improvement Partnership that was used to gather feedback from Early Intervention staff about care coordination activities. The template includes questions about referral processes, as well as how to improve information sharing and coordination among Early Intervention and primary care offices. June 2012 State-specific Oregon
Developmental Pediatrician Interview Template (Oregon ABCD III Project: 2012) This is an interview template developed by the Oregon Pediatric Improvement Partnership that was used to gather feedback from developmental pediatricians about care coordination activities. Questions focus on screening and referral processes as well as information sharing with primary care providers. June 2012 State-specific Oregon
Community Provider Strategic Interview Template (Oregon ABCD III Project: 2012) This is an interview template developed by the Oregon Pediatric Improvement Partnership that was used to gather feedback from community service providers about care coordination activities to inform the development of a managed care performance improvement project. The questions include topics such as referrals to Early Intervention/Early Childhood Special Education programs and interaction with medical providers, health plans, and other organizations. June 2012 State-specific Oregon
Baseline MCO Interview Template (Oregon ABCD III Project: 2012) This is an interview template developed by the Oregon Pediatric Improvement Partnership that was used to gather baseline feedback from managed care organizations about care coordination activities to inform the development of a managed care performance improvement project. Questions focus on measurement, screening expectations, reimbursement for care coordination, and referral guidelines and resources. June 2012 State-specific Oregon
Primary Care Provider Interview Template (Oregon ABCD III Project: 2012) This is an interview template developed by the Oregon Pediatric Improvement Partnership that was used to gather feedback from primary care providers about care coordination activities to inform the development of a managed care performance improvement project. Questions focus on topics such as screening, referral and follow up processes. June 2012 State-specific Oregon
Enhancing Developmentally Oriented Primary Care (Advocate Health Care, Healthy Steps Program; Illinois Chapter, American Academy of Pediatrics) The Enhancing Developmentally Oriented Primary Care Project (EDOPC) is a partnership of Advocate Health Care, Healthy Steps Program and the Illinois Chapter, American Academy of Pediatrics. The project seeks to improve the delivery and financing of preventive health and developmental services for children birth to age three. Much of the EDOPC work is related to, or informs, ICAAP’s ABCD III work. This web site contains up-to-date information on child development and mental health issues, including screening, referral and coding/billing for screenings. April 2012 Website Illinois
Maryland Developmental Screening Tool Selection Subcommittee (Maryland ABCD Project) PowerPoint presentation describing Maryland’s Developmental Screening Tool Selection Committee process. December 2008 State-specific Maryland
Notes from California’s Early Childhood Development Summit
(California ABCD Screening Academy Project) Notes from California’s Early Childhood Development Summit that brought stakeholders together to agree to a direction for the ongoing work of the State Leadership Collaborative on Early Childhood Development including: 1) A preliminary vision for working together; 2) Immediate next steps for producing results and sustaining our work. December 2008 State-specific California
Strategic Plan for Building a Comprehensive Children’s Mental Health System in Illinois Illinois Children’s Mental Health Partnership (ICMHP). September 2008 State-specific Illinois
Ohio ABCD Screening Academy stakeholder meeting held June 2008 (Ohio ABCD Screening Academy Project) PowerPoint presentation from Ohio stakeholder meeting held June 19, 2008. Presentation describes: Governor Strickland’s TurnAround Ohio Vision, a NASHP grant overview, subcommittee reports, and Health Disparities & Cultural Competence. June 2008 State-specific Ohio
Illinois Healthy Beginnings Advisory Committee (Illinois Healthy Beginnings) One-page discussion of issues Illinois faced developing their Stakeholder Advisory Committee. December 2007 State-specific Illinois
Illinois Healthy Beginnings: Advisory Committee Structure (Illinois ABCD Project) This document (shared at the June 18, 2007 ABCD TA call) describes how the Illinois ABCD Project (Illinois Healthy Beginnings) engaged stakeholders by creating an Advisory Committee and five subcommittees. December 2007 State-specific Illinois
Engaging and Working with Stakeholders (Scott Allen, Lori Smith, Carrie Fitzgerald) This presentation (shared at the June 18, 2007 ABCD TA call) describes why stakeholder engagement is important and details how three states (Illinois, Utah, and Iowa) reached out to stakeholders and structured their advisory groups. December 2007 NASHP – Commonwealth
State examples of stakeholder group structure (Jennifer May: NASHP) This document summarizes critical information about stakeholder groups in three of the ABCD states:  Illinois, Iowa, and Utah. The brief describes  stakeholder group leadership, membership, subcommittee structure, and frequency of meetings. December 2007 NASHP – Commonwealth
Engaging and Working with Stakeholders conference call (NASHP) PowerPoint presentation for ABCD Screening Academy Technical Assistance Call held June 18, 2007: Engaging and Working with Stakeholders. June 2007 NASHP – Commonwealth
Assuring Better Child Health and Development: A Screening Academy: ABCD Consortia states’ stakeholder group structure examples (Ann Cullen: NASHP)This document provides examples of ABCD Consortium experiences with stakeholder group engagement and summarizes critical information about stakeholder groups in three of the ABCD states: stakeholder group leadership, membership, subcommittee structure, and frequency of meeting. December 2006 NASHP – Commonwealth
Update on the ABCD Project, Enhancing Utah’s Capacity to Support Children Children’s Healthy Mental Development (Utah ABCD Project) This PowerPoint presentation was used to update stakeholders on Utah’s ABCD II project accomplishments and next steps. December 2006 State-specific Utah
Minimum Standards and Guidelines (Iowa’s ABCDII Project) This resource consists of the final guidelines developed for Medicaid providers for the identification of developmental and social-emotional problems in young children. December 2006 State-specific Iowa
Advisory Board Development (North Carolina ABCD Project) This document explores key participants, rationale and timing in the development an Advisory Board. December 2006 State-specific North Carolina
State Advisory Board Invitation (North Carolina ABCD Project) This letter was developed to invite key stakeholders to participate in the ABCD project Advisory Board. December 2006 State-specific North Carolina
State Advisory Board Work plan (North Carolina ABCD Project) This work plan was developed as part of the invitation for participation in the Advisory Board. The board’s mission, to address policy, reimbursement, and implementation issues necessary to assure that a model system can be replicated for all Medicaid children, is presented along with members’ responsibilities. December 2006 State-specific North Carolina
Supporting Maternal and Infant Mental Health: Beyond the Baby Blues (Antonia Wilcoxon: Minnesota Department of Human Services) This PowerPoint presentation for the Baby Blue Conference highlights strategies for supporting maternal and infant mental health in primary care. May 2006 State-specific Minnesota
How States are Working with Physicians to Improve the Quality of Children’s Health Care (Helen Pelletier, NASHP/CMWF: 2006) This report examines how state agencies and medical providers are working together to improve the quality of health care for children, particularly for those who are underserved and members of at-risk populations. The paper discusses the roles that states can play in supporting provider efforts to improve the quality of children’s health care, and it offers detailed profiles of five models for doing so: • Learning collaboratives, • Modified learning collaboratives, • Practice-based seminars, • Off-site workshops, and • Models that use technology. The report concludes by summarizing the lessons that states – and their partners – have learned from these efforts. April 2006 NASHP – Commonwealth
Agenda from Leadership Workshop on EPSDT and Title V: Collaboration to Improve Child Health Outcomes: April 27, 2006 (Iowa ABCD Project) Agenda from a Leadership Workshop on improving collaboration between EPSDT and Title V services. April 2006 State-specific Iowa
Early Childhood Health Systems Integration: Principles for Consideration (Iowa Institute for Public Health Practice) This document is a summary of 5 goals participants at the Early Childhood Health Systems Integration conference identified as early childhood health policy priorities within the framework of the Early Childhood Iowa Strategic Plan. February 2006 State-specific Iowa
What Doctors Should Know About: The Impact of Poverty on Young Children (Utah ABCD Project) Informational handout that summarizes issues related to the impact of poverty on young children and suggests options for advocacy, helping families and further information. December 2005 State-specific Utah
Building the Foundation for Bright Futures: Final Report of the NGA Task Force on School Readiness (Washington, DC: National Governor’s Association) This report highlights how states are leading the way in promoting school readiness and shows that there already exists much on which to build. This report presents different options for state action and provides a policy framework for coordinating state decisions across programs and agencies. (From Foreword) December 2005 Other
The Role of State Public Health in Perinatal Depression (ASTHO) ASTHO Maternal and Child Heatlh Fact Sheet provides an overview of perinatal depression and describes federal and state roles in addressing this as a public health issue. December 2005 Other
Assuring Better Child Health and Development (ABCD II): Illinois’ Healthy Beginnings: Overview of ABCD II and the Pilot Project (Illinois ABCD II Advisory Committee) This resource is an ABCD project update/overview for the Pilot Project Advisory Subcommittee meeting. October 2005 State-specific Illinois
ABCD II Healthy Beginnings Lessons Learned #2 (Illinois ABCD Healthy Beginnings) This report details lessons learned from periodic interviews with Healthy Beginnings subcommittee co-chairs. June 2005 Peer-reviewed Illinois
Children’s’ Mental Health: An Overview and Key Considerations for Health System Stakeholders (Karen VanLandeghem and Catherine Hess. Washington, DC: National Institute for Health Care Management Foundation) This paper provides an overview of child and adolescent mental health and considerations and resources for health care providers, health plans, and policymakers in addressing the mental health needs of children, youth, and their families. (From Executive Summary) February 2005 Other
Iowa’s ABCD II Healthy Mental Development Panel Prevention and Identification Workgroup (Iowa’s ABCD Project) This resource  lists workgroup members, staff, and responsibilities of the Developmental and Early Identification Workgroup under the ABCD Healthy Mental Development panel. December 2004 State-specific Iowa
Iowa’s EPSDT/ABCD Healthy Mental Development Panel (Iowa’s ABCD Project) This resource lists responsibilities, logistics, and membership for the Healthy Mental Development Panel. The Panel was charged with recommending standards and policies needed to develop an effective, coherent healthy mental development system in Iowa, and monitoring project implementation and recommending changes to standards and delivery systems based on the project evaluation. December 2004 State-specific Iowa
Iowa’s EPSDT/ABCD II Collaborative Board (Iowa’s ABCD Project) This resource lists the responsibilities, logistics, and membership of the EPSDT Interagency Collaborative Board. The EPSDT Interagency Collaborative Board (a pre-existing group) oversaw the Iowa ABCD project—receiving and acting on recommendations from the Health Mental Development Panel. December 2004 State-specific Illinois
ICAAP Membership Needs Assessment (Illinois Chapter of the American Academy of Pediatrics, ICAAP) This resource includes a cover letter and survey instrument for physician offices regarding child development services procedures. June 2004 State-specific Illinois
UPIQ Charter (UPIQ) Charter of the Utah Pediatric Partnership to Improve Children. December 2003 State-specific Utah
UPIQ Steering Committee Members (UPIQ) List of UPIQ Steering Committee Members. December 2003 State-specific Utah
Growing Up Healthy: What Local Governments Can Do to Support Young Children and Their Families (Parlakian, R., Washington, DC: Zero to Three) This paper examines the key areas in which local officials can have a measurable impact on growth and learning from birth to five. December 2002 Other
FPs Play Important Role in Early Childhood Development (Richard Hyer, American Academy of Family Physicians; AAFP News Department. October) This resource examines the importance of family physicians in identifying developmental delays. (From web overview) October 2002 Peer-reviewed
Report of the Surgeon General (Office of the Surgeon General. Washington, DC: U.S. Department of Health and Human Services) This report by the Surgeon General’s Office introduces a blueprint for addressing children’s mental health needs in the United States. According to the report, bridging the gap between research and practice is not the only necessary step. Connecting research and practice to policy is critical to ensuring access to quality mental health care for children and their families. (From Foreword) December 2000 Other
What Utah has Done to Facilitate an ADHD Partnership (UPIQ) Flyer on Utah’s efforts to facilitate partnerships between Medical and Mental Health Providers, Educators, and Parents to address ADHD. December 2000 State-specific Utah

 

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