Engaging Families

In the National Survey of Early Childhood Health, less than half of parents of young children reported that their pediatric primary care provider offered thorough “anticipatory guidance” related to their child’s health and development, and only 57 percent reported their child’s development had ever been assessed at a pediatric primary care visit.*  Additionally, because patient and family education to build self-management skills is considered a critical characteristic of high performance pediatric care coordination** providing adequate resources and education to families is critical to improving the health and development of young children.  Ultimately, families that understand the components of and have expectations of quality well child care will result in a greater demand for services and has the potential to improve the delivery of these services for all children.

ABCD states recognized that by providing useful information and tools to families to promote health physical, mental, social and emotional development, children will be able to better reach their full potential.  States used various approaches to provide education to families regarding expectations of their child’s health and development, including pamphlets, brochures, web-based resources, and surveys.  Additionally, states developed resources and materials to support providers in their efforts to effectively identify children at-risk for developmental delay thus improving the delivery and quality of anticipatory guidance.

This section includes tools created to educate families and promote the healthy development of young children.

 

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*Halfon N, Olson L, Inkelas M, et al., ”Summary statistics from the National Survey of Early Childhood Health, 2000,” National Center for Health Statistics. Vital Health Stat; 15, No. 3 (2002).

**Antonelli RC, McAllister JW, and Popp J, Developing Care Coordination as a Critical Component of a High Performance Pediatric Health Care System: Forging a Multidisciplinary Framework for Pediatric Care Coordination. (New York, NY: The Commonwealth Fund, Forthcoming 2009).

 

Title Description Date Published Resource State
Early Intervention and Early Childhood Special Education Spanish Language Brochure (Oregon ABCD III Project: 2013) This is a Spanish translation of the below brochure. April 2013 State-specific Oregon
Early Intervention and Early Childhood Special Education Brochure (Oregon ABCD III Project: 2013) This brochure was designed by the Oregon ABCD III team to provide information on the state’s Early Intervention and Early Childhood Special Education Program. The brochure includes information on the services offered, who can refer a child to the program, as well as contact information. April 2013 State-specific Oregon
Children’s Integrated Services Program Handout (Vermont Department for Children and Families) This is a handout for families that was developed by Vermont DCF. The handout describes the purpose of the Children’s Integrated Services (CIS) Program as well as the services it provides to families. December 2012 State-specific Vermont
Children’s Integrated Services Program Booklet (Vermont Department for Children and Families) This is a booklet put together by Vermont DCF to describe the services available to families through the Children’s Integrated Services Program (CIS). The CIS program is the name for Vermont’s approach to providing coordinated child development and family support services. December 2012 State-specific Vermont
Early Intervention Resources Website for Parents (Oregon Department of Education: 2012) This website contains information for parents of children who may be at risk for developmental delay. The website includes links to brochures (in English and Spanish) about Early Intervention, links to information for referral to Early Intervention, and more. June 2012 State-specific Oregon
Key Connection Sheet for Families – Garfield County (Oklahoma ABCD III Project: 2012) This document provides information to families whose children are referred for early childhood services via the electronic web portal. The sheet details the area of expertise and contact information for each of the 4 agencies that provide services and access the web portal. This particular sheet is meant for families in Garfield County, one of the Oklahoma ABCD III pilot counties. May 2012 State-specific Oklahoma
2011 ABCD III PIP Q & A’s (Oregon ABCD III Project) This is a series of answers to questions that those tasked with implementing the ABCD III Performance Improvement Project may have. Questions deal with topics such as collaboration and External Quality Review Organizations (EQROs). January 2011 State-specific Oregon
Parent Partnerships to Support Early Child Health and Development This webinar was based on an issue brief written by Nilofer Ahsan and Jill Rosenthal. It focused on a three-part framework for building parent engagement, why each level of engagement is critical to efforts to improve care coordination and services for young children, and how states engaged in these initiatives can incorporate parent partnerships into their work. This recording features a presentation by Nilofer Ahsan of the Center of the Study of Social Policy, as well as examples of these partnerships in action from representatives from Rhode Island and Colorado. May 2010 NASHP – Commonwealth
Engaging Parents as Partners to Support Early Child Health and Development (Nilofer Ahsan and Jill Rosenthal) This brief puts forth a three-part framework for engaging parents in supporting health child development: parents engaging with: 1) their child, 2) the services and programs they receive, and 3) the larger systems and policies that govern those services. May 2010 NASHP – Commonweath
Developmental Screening in Early Childhood Systems: Summary Report (American Academy of Pediatrics: Healthy Child Care America) This is a summary report of a meeting hosted by the American Academy of Pediatrics, Healthy Child Care America, and Child Care and Health Partnership. The goal was: “To strategize new ways to reach out to children and families in the community and child care settings to promote high-quality developmental screening in the context of the medical home.” March 2009 Other
Utah Medical Home Portal (Utah Medical Home Portal: Tab for Parents and Families) This page of the website provides information to help parents and other family members learn about caring for children with chronic and complex conditions and to help them become effective partners – with physicians and other health care professionals – in their child’s healthcare. (From website) Subsections focus on various aspects of assuring the best outcomes for your child. January 2009 State-specific Utah
Infant & Toddler Connection of Virginia (Virginia ABCD Project) The Infant Toddler Connection of Virginia assists families of children with delays and/or disabilities help their children learn and develop through everyday activities and routines so that they can participate fully in family and community activities. In order to take advantage of the services and supports available, families need to know about the system and how to access these resources, so this guide was developed to help providers inform families of the available resources. December 2008 State-specific Virginia
Family panel screening card – Spanish (Colorado ABCD Project) Proof copy of informational card promoting developmental screening. Answers three most common questions about screening. Spanish version. December 2007 State-specific Colorado
A Gift for Your Child! Give your child the gift of regular checkups. (Colorado ABCD Project) Color poster promoting developmental screening to families. English version. December 2007 State-specific Colorado
Family panel screening card – English (Colorado ABCD Project) Proof copy of informational card promoting developmental screening. Answers three most common questions about screening. English version. December 2007 State-specific Colorado
Find Your Child’s Developmental Age (Utah Registry of Autism and Developmental Disabilities (URADD)) Chart showing child’s age in relation to social-emotional needs, nutritional needs, motor skills, and understanding and talking. January 2007 State-specific Utah
Give your Child the Gift of Good Health: CHEC is Medicaid for Kids! (Utah ABCD Project) This comprehensive resource for parents of Medicaid children outlines Utah’s EPSDT services, describes what parents should expect of their health care visits as well as what roles they can play to keep children healthy. December 2006 State-specific Utah
Guide for parents when times are tough (Utah ABCD Project) This brochure provides parenting advice for parents of children ages 0-18. December 2006 State-specific Utah
Tips on healthy parenting for mothers with depression (Utah ABCD Project: National Mental Health Association) Strengthening Families Fact Sheet on parenting for parents with depression. December 2006 State-specific Utah
Child Abuse Prevention Bookmark (UPIQ) Child abuse prevention tips, services, websites, and phone numbers in bookmark form. December 2005 State-specific Utah
ABCD Glossary: Selected Terms Related to the Healthy Mental Development of Young Children (NASHP) This document provides definitions of selected terms related to the healthy mental development of young children. September 2005 NASHP – Commonwealth
Michigan ABCD Project Parent Survey Results IHCS, in collaboration with MDCH and the ABCD Workgroup, developed a brief 4-question (8-item) parent survey. Undated State-specific Michigan

 

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